1.0EdCity - Student (Sec)https://student.edcity.hk/sec/en/hke-antonio.kwokEdCity - Student (Sec) - 罕見病患者籲政府增撥資源rich600338<blockquote class="wp-embedded-content" data-secret="0ek53CGpkB"><a href="https://student.edcity.hk/sec/en/uncategorized/365/">罕見病患者籲政府增撥資源</a></blockquote><iframe sandbox="allow-scripts" security="restricted" src="https://student.edcity.hk/sec/en/uncategorized/365/embed/#?secret=0ek53CGpkB" width="600" height="338" title="“罕見病患者籲政府增撥資源” — EdCity - Student (Sec)" data-secret="0ek53CGpkB" frameborder="0" marginwidth="0" marginheight="0" scrolling="no" class="wp-embedded-content"></iframe><script type="text/javascript">
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https://sitestudentsecprodstor.blob.core.windows.net/uploads/2023/07/thumb_1543283076_20181003_罕見病患者籲政府增撥資源_280.jpg.png280210香港罕見疾病聯盟發表由香港大學進行的最新研究，發現罕見病患者對醫療服務需求趨增，全香港每67人就有一人患罕見病，佔人口1.5%；需要入院的個案則佔公院個案總數3.2%，醫療費達16億元，佔整體住院費4.3%。聯盟促港府制訂罕見病的定義，改善診斷及藥物審批制度。 有患者過去一年身體機能突然轉差，視力及活動能力不斷退化，要以輪椅代步，惟找不到病因，未能確診為罕見病患者。她努力考到獎學金上大學，希望當局增加資源，令患者獲適切治療。 參考報道：2018年9月26日《信報》